SILVA, J. G. T. et al. Social pain, gender, and people with sickle cell disease: an exploratory study [Dor social, gênero e pessoas com doença falciforme: um estudo exploratório]. Online Brazilian Nursing Journal, Vol. 17 No. 4, 2018.
Available on: https://doi.org/10.17665/1676-4285.2018v17n4
Objetive: Social pain, gender, and people with sickle cell disease: an exploratory study. Method: This is a qualitative and exploratory study and it was conducted in a Sickle Cell Disease Reference Center in a municipality in the interior of Bahia. The data obtained from Thematic Drawing-and-Story Procedure and interviews with 16 people were submitted to thematic content analysis. Results: Two categories have emerged: “Social pain in women with sickle cell disease is expressed in the impossibility of being a housewife, mother and woman sexually” and “The social pain of men with sickle cell disease is expressed in the difficulty of being a worker, a provider and a sexually active man”. Discussion: The exclusion of work, changes in sexuality and parenting interfere in life projects and maintain the reproduction of gender stereotypes. Conclusion: Sensitive listening in a multiprofessional care approach should be part of the therapeutic plan for people with sickle cell disease.